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MyMelanoma

MyMelanoma will recruit 20,000 melanoma patients to join the largest study of melanoma ever performed

MyMelanoma is a study designed to research the most important current questions about melanoma and its treatment. We will start with the questions listed here but MyMelanoma will uniquely involve its participants in deciding what additional questions need to be asked.

  • Should I make any changes in lifestyle after a diagnosis of melanoma?
  • Is there a test that will tell me more accurately the chance of my melanoma coming back (secondary melanoma)?
  • Would extra treatment help me after my surgery or if get secondary melanoma?
  • What does having a melanoma do to my quality of life?
  • What are the short term AND long term side effects of treatment?

Phase 1: Research into melanoma in families

The project will begin by recruiting rare melanoma sufferers who have developed their melanoma because they have inherited genes that increased the risk of melanoma considerably in families. Most carriers of these genes are identified because they have more than 1 cancer or have more relatives than usual with cancer, and have sought advice from Clinical Genetics Services. MyMelanoma will recruit participants who have been tested for genes increasing risk and would like to contribute to research that is designed to establish the risk of any cancer in people carrying these genetic mutations. This will be an international study and will be led by the MyMelanoma team working with the GenoMEL consortium www.genomel.org

 

To find out more about the study select a section below
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MyMelanoma Study

Join us and be part of our melanoma patient study. Find out more about the study and what would it mean for you?

MyMelanoma Study

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Why so big a study?

All of these questions can only be answered by collecting lots of information from patients and their blood and sometimes their stored tumour samples. MyMelanoma is therefore tackling complicated questions because every melanoma is different, every patient is different and each patient has a slightly different lifestyle. Researchers have to collect detailed information about each and then look at how these factors all interact. When scientists ask questions relating to such variation, then studies have to be very large to produce meaningful results that we can rely upon. 

Simply put the more data we have to analyse, the more accurate and in-depth the results will be, leading to a greater power to produce results that we are sure of and which will therefore make a difference. This is the reason for MyMelanoma: a very large version of what people have done before but with the power to get unequivocal answers.

 

Please Donate Here

We need your support to make this happen. Large or small, it all counts.

 

Join Us

To sign up to be part of MyMelanoma or if you have any further questions for us then please fill out the form. One of our team will be in touch as soon as possible.

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